Thursday, October 24, 2019

Inexorably moving to the right

Every time we visit our Oncology team I have to fill out a form, tick boxes mostly. We are into double figures of forms by now but today I think I did it for the last time.


It seems only yesterday that all my ticks were on the left.
A couple of times ago I noted the migration and today there were more further to the right than previously and the left hand side mostly vacant. I am thankful that my migration has not yet fully populated the extreme right but it seems that I'm on the way there.

As today's consultation drew to its end I was passed from my cancer nurse to a palliative care nurse. From Lizzie to Keith, in fact. No ceremony apart from the fact that for the first time we left Oncology without an appointment for a next visit.

Keith was calmly spoken, real and a gentleman, after all, he recognised me, in so far as he remembered that in a previous life I had helped "rescue" him. However, as I explained, when you are far from shore and your boat has broken down but is otherwise in no immediate peril you don't need rescuing, you just need a tow! It's obvious, really.

Now we will have form DS1500 to fill in when the palliative team pay us a visit.
And I qualify for a blue badge so now I can park wherever I like on double yellow lines and annoy people but at least it should spare the Jazz from Tesco dents. If the Merc had a boot worthy of the name I could take that shopping, eh?

... and summer is over officially.

Aberaeron... Wednesday 2nd October. Calmish. Greyish. Cold. Single figures of °C. The shorts were not even considered. 200 miles east and south its sunny and well into mid teens of °C.
Home tomorrow then.

A trip to New Quay first. Not to be confused with Newquay. An email to answer before anything else, though.

Cogitating as one does when not at home I'm not really surprised to conclude that the highlight of my summer was a wet Sunday night in a Methodist church in Keswick. Furthermore, the Methodist church that last time I was there I'd opined that I'd never go there again.

This ticket is a link to the talk given. It should open in a new window.

The ticket is pretty self explanatory, the event isn't.
I was wary of going to Keswick this year. I looked forward to the trip, the place and the trip back but the event, not so much.

I love the event which we've been attending for years but two years ago I was en chemo, as they may say, last year I was conscious of how little of it I was able to get out to. This year I wondered why I was going but in reality going was nothing to do with the event but all to do with the people we share this event with.

Almost immediately after our arrival my organiser noted the Sunday evening seminar and collected tickets on the assumption that if able I would go. I was. I did.

Dominic Smart, very, Yorkshireman living in Scotland. Suddenly struck with terminal cancer about a year ago. Sounds familiar.

Listening to him explain how he dealt with the news of the diagnosis, the effects of the treatment and the trials it added to his life was just about the most reassuring talk I've ever had the pleasure of hearing. You may be in a hall with a hundred or more but the talk is to you, just you.

You can witness all this, you can experience it, too but the tendency is to compartmentalise it and assume that the way you deal with it is unique to you.  It isn't. It's always those closest to you who suffer most. I've said it before but enduring suffering is far easier than watching ones you love endure suffering. 

I said to my wife earlier that one of the worst days of my life was barging into the chemo suite in Singleton hospital in Swansea. I was afraid I was late to take him home hence the rush. Hence the shortness of the visit and the mirth generated as I stood in the doorway in a dusty, dirty boiler suit having been up a ladder doing stuff 20 minutes earlier. 

I quickly understood the nurses desire to see me elsewhere immediately but even immediate was far too slow to diminish the sight of Paul in the NHS chair, bags suspended and tubes joined into his PICC line.  A sight I shall never forget because a few months earlier I had been there. Typically he found my boiler suited presence more than a trifle amusing. As he understood my anxiety to be there in good time to collect him. What's in an hour anyway?

Dominic Smart put into words what we needed to hear. He said it as it is. The common experience manifest individually. His low point was being sick in a drain in a car park. Mine was being unable to push a fork into a fish finger. Such events force you to confront what we wish we were spared. But we aren't and looking back I find a degree of amusement to be had. I wonder though if our wives look back at these events and see any thing worthy of mirth. Their experience is so far removed from ours but no less conjoined. But theirs will continue long after we have gone. And that is a cause for sorrow, far more than feeling a bit nauseous, a bit sore and a bit tired. Besides I've now got pills for two of those and a reclining chair in front of a pair of speakers for the other.

Dominic Smart, thank you.

New Quay, another place, another lesson. Parked up above their lifeboat house and a delightful wander down to find a Mersey. There can't be many of them left. A wander around the town, then? No. I struggled to get back to the car. Seriously struggled for breath, leaden footed, uncontrollable yawning.

Another moment in which life changed as it dawned on me that I could be struggling to get up Meor hill, let alone Windsor! Another taken for granted part of life gone. Like summer.

Makes you think.

How firm a foundation, you saints of the Lord,
is laid for your faith in his excellent Word!
What more can he say than to you he has said,
to you who for refuge to Jesus have fled?

“Fear not, I am with you, O be not dismayed;
for I am your God, and will still give you aid;
I’ll strengthen you, help you, and cause you to stand,
upheld by my righteous, omnipotent hand.

“When through the deep waters I call you to go,
the rivers of sorrow shall not overflow;
for I will be with you, your troubles to bless,
and sanctify to you your deepest distress.

“When through fiery trials your pathway shall lie,
my grace, all-sufficient, shall be your supply;
the flame shall not hurt you; I only design
your dross to consume and your gold to refine.

“E’en down to old age all my people shall prove
my sovereign, eternal, unchangeable love;
and when hoary hairs shall their temples adorn,
like lambs they shall still in my bosom be borne.

“The soul that on Jesus has leaned for repose,
I will not, I will not desert to his foes;
that soul, though all hell should endeavor to shake,
I’ll never, no never, no never forsake."

Anonymous

Dominic Smart blog:
https://paracetamolissounderrated.wordpress.com/

Tuesday, October 01, 2019

Life goes on

A year ago Today I walked down a chilly corridor in a single storey outhouse in a hospital car park at the end of which I was made to glow in the dark, so to speak.

This morning my view was far better at the start of the day.
 Looking West from Aberaeron Beach, not quite like most beaches but there's stones and some sand but only at LWS!

Actually, not quite the start of the day as it began with an email from my friend, Terry in NZ who had his Whipple a couple of weeks ago and awaits the start of chemo imminently.

Today we drive some 60 miles and plant crocus bulbs on a hillside overlooking Mumbles Light and lifeboat station. The bulbs will lie directly in front of his headstone the back of which depicts a copy of a tattoo and a verse from the book of Proverbs which sums life up most eloquently.

Today Paul would have been 37.

Once the bulbs are planted we will adjourn to here, Ripples. An ice cream shop on the seafront next door to where he once lived as a student with great friends and even more bikes.
Appropriate, too that the name is on a bike and that his son has developed his Dads liking for ice cream ...... and flakes, of course.

A far better day than a year ago.

We will then drive back to Aberaeron

Not all pain responds to pain killers but life does go on and for that I am thankful.

I must reply to an email. But not tonight.